At Sandfield Day Nursery in Headington, children and colleagues came together to celebrate two inspiring members of their nursery community in recognition of Rare Disease Day.
Embracing this year’s theme, ‘Show Your Stripes’, the Ofsted-rated ‘Outstanding’ nursery on Sandfield Road was awash with colour as children and staff took part in a themed dress-up day. The occasion honoured pre-schooler Orlaith, who lives with the extremely rare genetic condition PPP3CA, and Team Leader; Maddi Stone, who has Cushing’s disease – a rare form of Cushing’s syndrome caused by a non-cancerous tumour on the pituitary gland.
Orlaith is one of fewer than 100 people worldwide known to have this specific genetic variant, meaning research and understanding of the condition remain extremely limited. Last year, Childbase Partnership supported her physiotherapy journey through its Charity Support Fund, enabling her to access vital specialist support. Thanks to this and her own incredible determination, Orlaith is making fantastic progress in reaching developmental milestones.
Meanwhile, Maddi continues to battle Cushing’s disease after previous unsuccessful treatments. Despite the challenges she faces, she remains positive and determined, with everyone hopeful the next phase of treatment will bring good news.
Sandfield Business Administrator, Becci Worth explained;
“Rare Disease Day is about raising awareness and helping to drive positive change for the 300 million people worldwide living with one, as well as their families and carers. At Sandfield, we believe it’s so important that children grow up celebrating differences and understanding that everyone’s journey is unique. When children see inclusion in action, it helps to build empathy, kindness and confidence that will stay with them for life.
We are incredibly proud of Orlaith and how far she has come – the resilience and determination she shows every single day is truly inspiring. And Maddi is a true fighter, approaching each day with a smile and such positivity. They both embody strength in different ways, and we feel very lucky to have them as part of our nursery family.”
Rare Disease Day is marked on 28th February 2026.
